Good news! Trey has rebounded a little bit. He’s still having low grade fevers, but his blood pressure is much more stable. His appetite is weak, but he is sitting up and has some energy. I sure love when he feels good. Keep praying for Trey!!!
pastorjfreeman
Pastor of FBC Newcastle, OK
Category Archives: Pray 4 Trey
HE IS…
Some good friends dropped this card off at the hospital today. I needed this reminder and you probably do too. God is all these things and so much more:
Rough Start to Today
Well, Trey woke up with a fever at 3am and some tummy pain…his blood pressure was also a little low, so they gave him some fluids. He was given Tylenol and his fever came down nicely. However, he had another fever when he woke up this morning, along with some tummy pain. His blood pressure has remained up, but he is still receiving fluids. Any way, the doctor wants to hold off on the Campath this morning and see how Trey is this afternoon. I hate Trey not getting Campath, but maybe his body needs a breather…I just don’t know, but the Lord does.
Pray for a few things please:
1. Fever to stay away;
2. Blood pressure to remain normal;
3. Wisdom for when to give Campath;
4. Rash to GO AWAY!!!!
Thank you so much!
Trey Update
Trey is doing pretty good. He has come A LONG way since he very serious episodes he had a while back. His fevers are virtually non-existent; his tummy pain is also rare these days; and just overall we can tell he feels better. He has more energy, a better appetite and is requiring less medication. He is almost completely off steroids…which is a good thing for his body.
His rash is also a little peculiar these days. It is still VERY pronounced, but it seems better in some places. He definitely has some new spots developing, but some of the other places that were very dark seem to be lightening up a little. Our doctors have been hesitant to do anything more extreme because they would rather see if the Campath and creams we are using continue to help. What I’m really hoping is that the Campath is now working on the cancer cells that have infiltrated Trey’s skin. Since we are finally seeing some signs of improvement, perhaps the Campath is working. It’s just hard to say. Any way, we continue to pray this situation resolves itself so more extreme measures can be avoided.
As far as the next transplant goes, we are really in a watch and wait kind of situation right now. Our doctors would love Trey to be 6 months post transplant before they do another one and expose him to more chemotherapy. That would be mid-late June since his last transplant was Dec. 27. They want Trey as healthy as possible before they proceed. Please keep praying for God’s perfect timing on all this.
As always, we have much to trust God with. Baby Toby is still stable, but also in a continued highly critical state. This is an important week for him as they try to get his lungs working again. Please keep lifting the Stewarts up to the Lord.
I will post again sometime in the next 2 days. Here is a verse I read today that is a prayer for all of us:
“I wait for the Lord, my soul waits, and in his word I hope (Psalms 130:5).”
Keep praying! We love you.
Journey for Trey!
On Saturday, June 8th, a community event is being organized as a fundraiser for the Trey Freeman Medical Fund. It’s called Journey for Trey. This upcoming event was organized by a little boy in Trey’s kindergarten class who wanted desperately to do something big and special for his friend. He was so sad not to be able to be tested as a potential bone marrow donor for Trey, but he was determined to try and find a way to help. His heart for Trey and determination to help has been so touching, and we are so thankful to Maddyx Snow and his family!!! The details are below. Please participate and purchase a t-shirt if you can:
Trey’s a Champ!
Trey handled Campath like a pro today. His body is clearly getting used to that drug and it’s helping keep the bad cells suppressed. Please continue to pray his skin condition resolves itself. Emily and I both think it looks better.
Thanks for praying though. We couldn’t do this journey without you.
There also really no new news on Toby. This is an important week though as they are trying some new meds on him. Jeannie said he was stable to with some very moderate improvements. Please keep praying for him.
We love you!
Jeremy
Heading Back
We are heading back to big D today! Trey has had three wonderful days at home. Generally, when we are at the hospital, it’s often hard to get him out of the bed, but being home was a different story. He had energy, laughed a lot, got good exercise, slept well, and just enjoyed being home! It was refreshing to our soul to see him this way. I’m not sure if it will be harder on him or us going back. I laid in bed last night not wanting to go to sleep because I wanted things to remain as they were…but the Lord is good and gracious, and He will be with us today as we make yet another transition.
Emily will be with Trey for a few days, and then we will swap later this week. Ill have Emily post an update tomorrow sometime after the doctor makes his rounds. Trey will be getting Campath today, so we ask for your prayers for this. Please pray his body handled it well and that the medicine attack the cells in his skin.
We love you and so appreciate your prayers!
Under One Roof
We have had some good days together! Trey did get to come home on Friday and all 7 of us were under one roof for the first time since early April. It was awesome! I love being together and love watching Trey interact with his siblings. We are hoping Trey can stay fever/problem free, at least for the rest of the weekend. We are taking him back on Monday and look forward to seeing what his lab work reveals after being home for a few days.
Trey’s skin problems continue and we persist in prayer asking God to help remove the problems. Once again though, we are grateful Trey’s rash does not really bother him. He has had such a good time being home though and I so love that for him.
Any way, I will probably post again on Monday, but until then, I’m just going to enjoy time with the family. Please keep praying for Trey…we want to pray him all the way home for good.
Also, please keep praying for Toby, my nephew. Ben and Jeannie are trusting the Lord with their son, but he is in a very difficult situation. Toby may have many things going against him medically, but he is in the Lord’s hands totally. Keep lifting him up to the Lord. God has a plan.
Thanks for journeying with us and laboring with us in prayer. We love you!
Travel Clothes
We are still waiting for the doctor’s approval to leave for the weekend, but check out the shirt Trey wants to travel home in if he gets to leave:
He is Able!
As I write this, life is in a very difficult place for me, my family, and my community. I’ve been reflecting greatly on these challenges and struggles over the past few days. Currently, my mother in law continues to bravely battle stage four bone cancer; my brother and sister-in-law are facing an incredibly tumultuous and volatile situation with their new baby; my own mother recently had a mild surgery and experienced some complications from that; our community and state just experienced one of the most horrific tornadoes in human history; my worship pastor just lost his father, I’m doing a funeral for a beloved member of our church this Saturday, and of course, our youngest son continues to fight daily for his life. So, with all that going on, you can imagine why I was crying out to God to spare our home as I sat in my neighbor’s storm shelter just a few days ago…I prayed, “Please Lord, I’m not sure I could handle one more thing right now.”
However, as I have been reflecting, I am coming to understand in a new way that there is NOTHING I cannot handle with the grace and strength of the Lord. If I would have popped my head out of the storm shelter and found my house leveled, God would have supplied what I would have needed to endure. I’m not saying I would have enjoyed that loss by any means…what I am saying is that somehow, someway, God would have provided what I needed. At the end of John 15:5, Jesus tells us that “apart from Him, we can do nothing,” while Philippians 4:13 says that “we can do all things through Christ who strengthens us.” So…what that tells me is that I desperately need to cling to the Jesus EVERY SECOND OF EVERYDAY, because with Him I can endure any storm, but without Him, I’ll sink faster than a boulder that’s dropped into a pond. If there is anything I know right now, it is this: I need Jesus like the air I breathe…every minute or everyday.
What happens in most of our American-Christian lives though, is we get comfortable. We get used to living the American dream and rocked to sleep with the comforts and conveniences of this world. And then…suffering comes…tragedy strikes…and we are awakened out of this worldly sleep and realize just how far we have drifted from our desperate and daily need to walk with Jesus. Suffering, on any level, causes God’s children to cry out for help, for deliverance, for strength, etc. When we suffer, we always find ourselves facing situations beyond our control and we feel helpless…BUT…it is in those moments that God shows up and becomes more real to us than perhaps ever before. In those moments, we find out if we truly trust the One we have entrusted our soul to. We find out that God is more than able to carry the weight we bear and has what we need to endure it. We find out that God is without a doubt ALL we need because He becomes ALL we have!
So, as I reflect…I’m grieving in many ways and for many people; I’m hurting with and for many people, and I’m also longing for patience and strength and grace for all…but I know this, God is the source of those things and He will gloriously supply all my needs and the needs of those who trust in Jesus Christ! As the Scripture says, “His grace is sufficient and His power is made perfect in our weaknesses.” Well…I sit here today weak, but knowing He is strong! I sit here today knowing I cannot, but He can! I sit here today not knowing what my next step be, but knowing He is directing all of my steps. So…today…in the midst of whatever you and I face…HE IS ABLE AND HE WILL SEE US ALL THROUGH!
“Lord, help us all to look to You and trust in You today! While our lives are constantly changing, YOU NEVER CHANGE! You are our Rock, our deliver, the only true God…and our hearts rest in You. We love You Lord!” Help us. In Jesus’ Name, Amen.”
pastorjfreeman 