Trey is doing pretty good. He has come A LONG way since he very serious episodes he had a while back. His fevers are virtually non-existent; his tummy pain is also rare these days; and just overall we can tell he feels better. He has more energy, a better appetite and is requiring less medication. He is almost completely off steroids…which is a good thing for his body.
His rash is also a little peculiar these days. It is still VERY pronounced, but it seems better in some places. He definitely has some new spots developing, but some of the other places that were very dark seem to be lightening up a little. Our doctors have been hesitant to do anything more extreme because they would rather see if the Campath and creams we are using continue to help. What I’m really hoping is that the Campath is now working on the cancer cells that have infiltrated Trey’s skin. Since we are finally seeing some signs of improvement, perhaps the Campath is working. It’s just hard to say. Any way, we continue to pray this situation resolves itself so more extreme measures can be avoided.
As far as the next transplant goes, we are really in a watch and wait kind of situation right now. Our doctors would love Trey to be 6 months post transplant before they do another one and expose him to more chemotherapy. That would be mid-late June since his last transplant was Dec. 27. They want Trey as healthy as possible before they proceed. Please keep praying for God’s perfect timing on all this.
As always, we have much to trust God with. Baby Toby is still stable, but also in a continued highly critical state. This is an important week for him as they try to get his lungs working again. Please keep lifting the Stewarts up to the Lord.
I will post again sometime in the next 2 days. Here is a verse I read today that is a prayer for all of us:
“I wait for the Lord, my soul waits, and in his word I hope (Psalms 130:5).”
Keep praying! We love you.