pastorjfreeman

It has been a while since I posted…which is a good thing because there has not been much to update. However, we have one big prayer need right now for Trey.

Trey skin condition is a problem. I don’t like to use the word rash any more, because it doesn’t aptly describe his problem. It’s much more serious than a rash…it is basically an infiltration of the lukemia cells in his skin…and it’s all over his body. There are days his skin looks better and days it is worse, and for whatever reason, the Campath is not destroying these bad cells that are in the skin. I can tell our doctors are concerned about it and are beginning to talk about more aggressive treatment options. We don’t want Trey to have to undergo more exploratory and perhaps unnecessary treatments…what we want is the “rash” to resolve itself.

So, what we are asking is for some very specific prayer for Trey’s skin problem:

1. Pray his skin just miraculously begins to clear up…Trey and I prayed about this today! Join us in this prayer please;
2. Pray the doctors have tremendous wisdom about treatment. Pray God opens their eyes to something they have not seen and that the treatment they offer will work!

Trey’s skin condition is setting us back. We need it resolved quickly. I am praying and believing that God is going to handle this for Trey, just like He’s handled everything else. Our God is able and we believe!!!

Also, here is a brief update on Toby. According to Ben and Jeannie, the doctors want to watch Toby a few more days before they do the lung biopsy. Toby has had some very moderate improvement in his lungs and the docs just want to give the lungs a few more days. Please pray his lungs continue to heal!

As always, keep praying…our God is in control! He is our refuge and strong tower!!! We trust Him!

Good news! Trey has rebounded a little bit. He’s still having low grade fevers, but his blood pressure is much more stable. His appetite is weak, but he is sitting up and has some energy. I sure love when he feels good. Keep praying for Trey!!!

Well, Trey woke up with a fever at 3am and some tummy pain…his blood pressure was also a little low, so they gave him some fluids. He was given Tylenol and his fever came down nicely. However, he had another fever when he woke up this morning, along with some tummy pain. His blood pressure has remained up, but he is still receiving fluids. Any way, the doctor wants to hold off on the Campath this morning and see how Trey is this afternoon. I hate Trey not getting Campath, but maybe his body needs a breather…I just don’t know, but the Lord does.

Pray for a few things please:

1. Fever to stay away;
2. Blood pressure to remain normal;
3. Wisdom for when to give Campath;
4. Rash to GO AWAY!!!!

Thank you so much!

Trey is doing pretty good. He has come A LONG way since he very serious episodes he had a while back. His fevers are virtually non-existent; his tummy pain is also rare these days; and just overall we can tell he feels better. He has more energy, a better appetite and is requiring less medication. He is almost completely off steroids…which is a good thing for his body.

His rash is also a little peculiar these days. It is still VERY pronounced, but it seems better in some places. He definitely has some new spots developing, but some of the other places that were very dark seem to be lightening up a little. Our doctors have been hesitant to do anything more extreme because they would rather see if the Campath and creams we are using continue to help. What I’m really hoping is that the Campath is now working on the cancer cells that have infiltrated Trey’s skin. Since we are finally seeing some signs of improvement, perhaps the Campath is working. It’s just hard to say. Any way, we continue to pray this situation resolves itself so more extreme measures can be avoided.

As far as the next transplant goes, we are really in a watch and wait kind of situation right now. Our doctors would love Trey to be 6 months post transplant before they do another one and expose him to more chemotherapy. That would be mid-late June since his last transplant was Dec. 27. They want Trey as healthy as possible before they proceed. Please keep praying for God’s perfect timing on all this.

As always, we have much to trust God with. Baby Toby is still stable, but also in a continued highly critical state. This is an important week for him as they try to get his lungs working again. Please keep lifting the Stewarts up to the Lord.

I will post again sometime in the next 2 days. Here is a verse I read today that is a prayer for all of us:

“I wait for the Lord, my soul waits, and in his word I hope (Psalms 130:5).”

Keep praying! We love you.

On Saturday, June 8th, a community event is being organized as a fundraiser for the Trey Freeman Medical Fund. It’s called Journey for Trey. This upcoming event was organized by a little boy in Trey’s kindergarten class who wanted desperately to do something big and special for his friend. He was so sad not to be able to be tested as a potential bone marrow donor for Trey, but he was determined to try and find a way to help. His heart for Trey and determination to help has been so touching, and we are so thankful to Maddyx Snow and his family!!! The details are below. Please participate and purchase a t-shirt if you can:

Trey handled Campath like a pro today. His body is clearly getting used to that drug and it’s helping keep the bad cells suppressed. Please continue to pray his skin condition resolves itself. Emily and I both think it looks better.

Thanks for praying though. We couldn’t do this journey without you.

There also really no new news on Toby. This is an important week though as they are trying some new meds on him. Jeannie said he was stable to with some very moderate improvements. Please keep praying for him.

We love you!

Jeremy