Update -May 7, 2013

I’m back with Trey and he’s doing pretty good. His liver enzymes were down this morning, still high, but not nearly as high as they’ve been. His bilirubin is well within the normal range too…so that’s great.

He does have a strange looking rash in his abdominal area, that has spread a little to his tummy and on his back. They are going to biopsy that tomorrow and see what it is. We are praying it is just a reaction to the Campath or meds, and not a result of the abnormal cells. Please pray about this. I would love to see the rash begin to go down in the next 24 hours.

Also, I think Trey’s tummy looks smaller and is softer. It’s not nearly as big as it has been. I am sure part of that is because his steroid dosage has been reduced, but I’m also praying perhaps his liver and spleen are reducing in size too. The doctor felt his tummy this morning and his spleen is still enlarged, but his tummy just looks smaller.

They will do another flow cytometry next week, along with an ultrasound of the tummy. I’m praying the results of these things will stagger the minds of the doctors. I pray the abnormal cell percentage is non-existent and that the ultrasound shows a normal sized spleen. I’m asking God for these things, recognizing He will do as He pleases…but I believe He can do the miraculous and we simply trust Him.

Trey has also been fever free for over 24 hours and he has not complained of any tummy pain in over 24 hours…both wonderful blessings! Trust me, Emily and I have learned not to make too much of these things, but we sure celebrate as many victories as possible along the way.

I just think Trey looks better than he has in a while and I’m giving God glory for that. Keep your praying going!!!

Don’t forget about the bone marrow drive at FBC Newcastle this Wednesday, May 8, from 5pm-8pm. You must be in good health, between the ages of 18-44, and willing to have your mouth swabbed and DNA entered into the national marrow registry. Please spread the word. For those who cannot be there, go to http://m.marrow.org/ to find out how you can help where you live!

Thanks everyone!!!

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